Drawing Upon The Right to Privacy To Craft Laws to Protect Genetic Information

2008 (Unfinished)
The value of privacy to individuals and society as a whole has historically absorbed the interest of scholars from disciplines that vary from religion to politics; oftentimes scientific or technological discoveries create new perspectives on privacy in our lives which raise ethical and legal concerns. The completion of the sequencing of the human genome and the resulting scientific advancements which have been made that have enabled ready access to information about one's deoxyribonucleic acid ("DNA"), present unique challenges to defining legal privacy protections...

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An Alternative to Intellectual Property Laws in Pharmacogenomics

 2006

International Journal of the Humanities

The completion of a high quality comprehensive sequence of the human genome has lead to the discovery of genetic links to complex diseases and the development of target drugs. Population databases which have been used in research for many decades can now be analyzed for genetic variations at the DNA level and links to simple and complex diseases can be made. Population genetic databases (PGDs) are a powerful resource to the systematic study of the genetic component of disease; the benefits to society from this science are far reaching.Through an analysis of current database protection laws, patent law and the open source biotechnology movement this paper examines how laws and norms can impact innovation in the field of pharmacogenomics.

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A Call From the Panopticon to the Judicial Chamber “Expect Privacy!”

May 2006

Legal privacy and security issues in information technology - volume 1
Privacy is necessary in order for one to develop physically, mentally and affectively. Autonomy and self definition have been recognized by the United States Supreme Court as being values of privacy. In our technologically advanced, and fear driven society, however, our right to privacy has been severely eroded. Due to encroachment by government and business we have a diminished expectation of privacy. This article examines the detriments to self and society which result from a reduced sphere of privacy, as well as offering a modest suggestion for a method to reintroduce an improved conception of privacy into citizens lives.

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Global Aspects of Cyberlaw

January 2006

Handbook of Information Security: Information Warfare, Social, Legal, and International Issues and Security Foundations, Volume 2
As we stand firmly in the 2Ist century, we can see that the Internet has transformed from a research network into a viable commercial marketplace. The legal framework of the Internet has also undergone significant changes from the time when John Perry Barlow declared: Governments of the Industrial World. you weary giants of flesh and steel, !come from Cyberspace, the new home of the Mind. On behalf of the future. I ask you of the past to leave us alone. You are not welcome among us. You have no sovereignty where we gather.

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Exploring the Key Informational, Ethical and Legal Concerns to the Development of Population Genomic Databases for Pharmacogenomic Research

June 2005

InSITE 2005: Informing Science + IT Education Conference
The completion of a high quality comprehensive sequence of the human genome has lead to the discovery of genic links to complex diseases and the development of target drugs. Population genetic databases (PGDs) are a powerful resource to the systematic study of the genetic components of disease; in the quest to understand the impact of genetic factors on drug response data from laboratory experiments, computational methods and clinical studies must be integrated. The establishment of a pharmacogenomics knowledge base entails complex information management balanced with the appropriate legal end ethical standards...

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